Authors
I Koné-Paut, M Darce Bello, F Shahram, S Ozen, Rolando Cimaz, M Hofer, B Chkirate, K Bouayed, M Gattorno, J Anton, L Cantarini, A Faye, I Tugal-Tuktun, S Benamour, J Kümmerle-Deschner, A Arnoux, T Tran
Publication date
2013/6/1
Journal
Annals of the Rheumatic Diseases
Volume
71
Issue
Suppl 3
Pages
431-431
Publisher
BMJ Publishing Group Ltd
Description
Background
BD is rarely encountered in patients before 16y where the disease is very difficult to recognize. In addition to the diagnostic challenge, the outcome of patients with few symptoms is currently unknown.
Objectives
PED-BD is an international database aimed to define the outcome of either paediatric BD patients or patients with at least two symptoms of the disease, in order to propose paediatric criteria for BD.
Methods
An international expert committee has defined criteria for eligibility in the study. New patients or patients followed for a maximum of 3 years, who presented at least 2 symptoms of BD (among a list), were selected for retrospective and prospective analyses. An eCRF was built and inserted into a secured database (CLeanWeb). Patients included are reviewed yearly and judged as definite, probable or not BD, by an expert committee.
Results
206 patients (SR:1), from 22 centres of 12 countries …
Scholar articles
I Koné-Paut, MD Bello, F Shahram, S Ozen, R Cimaz… - Annals of the Rheumatic Diseases, 2013